Funny story regarding yesterday. I know I filled you all in on the narcoleptic attack that lasted the entire 6 hours of Rituximab infusion, just that the story did not stop there. I was able to have a quick bite to eat, then sat on my bed thinking I would send off a few emails, get caught up, etc. Problem is I kept drifting in and out of consciousness to the point where I finally said enough is enough, hit the lights, it's time for bed (a dubuious task to convince yourself of when you have already slept away your day). Well, apparently, it was the right move, because I did not shift again until 8 AM today!
I have not slept 17-18 hours in a day since I was a teenager! It made me chuckle to myself as Dr .Fedorenko kept telling me with my stem cell reinfusion that I was looking younger by the minute! Maybe there is something there, but we won't get too excited yet:)
Today will be all about getting the body moving again, trying to break down the cobwebs and pushing the envelope to within reasonable limits.
I'll publish more once I get the blood work back in. No bone pains last night either, which was a definitely plus!
Blood Values for Today:
Hemoglobin slightly up to 108
Leukocytes holding at 21.78
Platelets 342
Dr. Fedorenko has assured me that the values of the leuks will continue to fall, with the next big set of blood chemistry tests being Friday. Not as much purpose in performing them each day as we just have to wait for my body to settle down into normal limits, which takes time.
On Friday, we will review all of my translated charting and subsequent medications, supplements which he recommends I continue with upon my return to Canada. This will be followed up with regular appointments over the next coming months with my GP to ensure things regulate as expected.
Tough day getting around today, although as usual I did push with several walks. This is partly from total lack of exercise and movement yesterday, but likely more because now I have a secondary agent working through my body breaking down other specific components of my immune system. The good thing...is other than tapering down on meds, we are on the right side of the treatment regime:)
We will see what another night with good sleep brings. Each day opens new horizons!
Love from Moscow!