KEITH'S JOURNEY TO MOSCOW TO RID HIMSELF OF MS
Hematopoietic Stem Cell Transplantation for MS
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DAY +14:  dAY AFTER RITUXIMAB

8/10/2013

5 Comments

 
Today will be a two part post as the blood work has been drawn, but will not be received for the next couple of hours.
Funny story regarding yesterday.  I know I filled you all in on the narcoleptic attack that lasted the entire 6 hours of Rituximab infusion, just that the story did not stop there.  I was able to have a quick bite to eat, then sat on my bed thinking I would send off a few emails, get caught up, etc.  Problem is I kept drifting in and out of consciousness to the point where I finally said enough is enough, hit the lights, it's time for bed (a dubuious task to convince yourself of when you have already slept away your day).  Well, apparently, it was the right move, because I did not shift again until 8 AM today!
I have not slept 17-18 hours in a day since I was a teenager!  It made me chuckle to myself as Dr .Fedorenko kept telling me with my stem cell reinfusion that I was looking younger by the minute!  Maybe there is something there, but we won't get too excited yet:)
Today will be all about getting the body moving again, trying to break down the cobwebs and pushing the envelope to within reasonable limits.
I'll publish more once I get the blood work back in.  No bone pains last night either, which was a definitely plus!

Blood Values for Today:

Hemoglobin slightly up to 108
Leukocytes holding at 21.78
Platelets 342

Dr. Fedorenko has assured me that the values of the leuks will continue to fall, with the next big set of blood chemistry tests being Friday.  Not as much purpose in performing them each day as we just have to wait for my body to settle down into normal limits, which takes time.
    On Friday, we will review all of my translated charting and subsequent medications, supplements which he recommends I continue with upon my return to Canada.  This will be followed up with regular appointments over the next coming months with my GP to ensure things regulate as expected.
    Tough day getting around today, although as usual I did push with several walks.  This is partly from total lack of exercise and movement yesterday, but likely more because now I have a secondary agent working through my body breaking down other specific components of  my immune system.  The good thing...is other than tapering down on meds, we are on the right side of the treatment regime:)
We will see what another night with good sleep brings.  Each day opens new horizons!
Love from Moscow!
5 Comments
Robin
9/10/2013 02:18:43 am

Just keep listening.....you will know your bod sooooo well and that alone is such healing....
Sleep can be so healing while your insides are hard at work. Sleep won't come so easily with 3 little ones..soooo..ENJOY 💤

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Jo Lennie
9/10/2013 09:26:47 am

I agree that each day opens new horizons for everyone and It sounds like you are taking this one day at a time and finding the bright light in each day. Keep it up! You will be home soon.

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joanne K
9/10/2013 03:36:18 pm

Finally added your blog to my homepage after a month and now just took the time to figure out how to add a comment - super glad to hear things are going so well. Keep up the positive attitude - it is very inspiring!!! And looking good too!!! I hope u are skyping lots to Tanya and the kids so you're not missing them too much. Gotta love technology!!! Cheers :)

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Dorie
9/10/2013 11:20:26 pm

Thank you Keith for your inspiring optimism, humorous updates, and informative communication from the east side.
All good reasons to have a Happy Thanksgiving.

Reply
Adam
10/10/2013 03:25:24 am

Finally got connected to your site, Keith. Your attitude is amazing, buddy. Looking forward to you getting home so that we can schedule a hockey-watching night!

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